Six days upon the road.....

by Otony, Sunday, July 28, 2013, 16:52 (4140 days ago)

Just rolled in from California. My step-mother, Maria Aveni, passed away in Los Altos, CA this past Monday, and we made a fast trip down to make arrangements and attend the funeral. Short notice for all involved, unfortunately.

We drove 10+ hours including stops both Tuesday and Wednesday. Thursday and Friday was the viewing, church service, and internment, and it was 4+ hours on the road each day as we stayed with my niece in Lafayette. Then came the long slog home Saturday and today.

This was our 33rd trip to California to see Maria since moving to Walla Walla four years ago. I would have gladly made 33 more trips if it would have changed her condition. Seven years in a nursing home with advanced Alzheimer's disease is no fit way to live. We tried to move her closer to home, but her doctor advised against it due to her fragility. Had she been closer we would have visited far more often, but as it stood, she has been in a vegetative state for years and years. A bitter pill I tell you.

God Speed Maria, we miss your gentle heart.

Otony

Six days upon the road.....

by Charles, Sunday, July 28, 2013, 17:10 (4140 days ago) @ Otony

I am glad it is over. I am sad it is over. I wish all of you well and God speed.

Six days upon the road.....

by Otony, Sunday, July 28, 2013, 18:49 (4140 days ago) @ Charles

Well said as usual, thank you Charles.

Otony

I am sorry for your loss but...

by Hobie ⌂ @, Shenandoah Valley of Virginia, Sunday, July 28, 2013, 17:31 (4140 days ago) @ Otony

...having been down that "road" myself I firmly believe that she knew and appreciated all you did for her. I know that with my mom there was some little bit of her that could coalesce reality now and again. She was able to tell me she was ready to go and to say goodbye when she was making that transition.

--
Sincerely,

Hobie

I am sorry for your loss but...

by Otony, Sunday, July 28, 2013, 18:48 (4140 days ago) @ Hobie

Thank you Hobie, your words are much appreciated.

Otony

I'll keep all of you in my thoughts

by brionic @, Sunday, July 28, 2013, 17:44 (4140 days ago) @ Otony

"I would do it all over again" holds deep meaning.

Godspeed.

I'll keep all of you in my thoughts

by Otony, Sunday, July 28, 2013, 18:47 (4140 days ago) @ brionic

Thank you sir. We didn't endure a quarter of the ordeal you and yours went through, but it was long and sad nonetheless.

When we still lived in California we visited her daily for the first year she was in the nursing home. Every day, without fail.

Over the next two years as she slipped deeper into the nightmare of Alzheimer's our visits were not so frequent. We stopped in every two or three days, rather than daily. By that point she no longer recognized anyone, and her vocabulary was reduced to about a dozen words or less. We visited more to keep the staff on their toes. That was the time of our worst despair, really, as we watched an intelligent, educated woman (Masters degree) reduced to a uncomprehending, crying imitation of a human being. No way for us to change things, much as we wished. No tools to help induces frustration and stress. My health deteriorated.

By the time we moved in March of 2009, she was reduced to calling the nurse mama, and could say only two or three other words. Shortly thereafter she stopped speaking all together. No light of recognition, that had actually dissapeared the first year. Just a dark tunnel without end.

The next four years we drove down to see her, the trip took two days in each direction, plus whatever time we spent there. Our kids endured this starting at four years of age, and less than one year old respectively. Needless to say, we have two of the most seasoned travelers in our children you could ever hope for. Each trip totalled up over a 1000 miles, so we put over 33,000 miles on my Chevy pickemup truck just visiting her. Those trips accomplished little save to placate our worries, and did little in that regard frankly.

At the time of our move, we tried to make arrangements to bring her here to Walla Walla. It would have required a 2 or 3 day medical transport accompanied by a nurse. Her doctor said no way, more than likely she would arrive doa. Thus the road trips. I fretted that we couldn't come more often, and made arrangements for a niece and a cousin to visit in our stead. I should mention that I had another niece who lived less than 15 minutes away, and Maria had a cousin who was about 20 minutes away. Too bad we can file charges for neglect, as they couldn't be bothered to see her more than a few times....in seven years.

A year or so back I got the bright idea to move her to Redding, CA. It is five hours closer to us, and a large town with lots of retirees. Many nursing homes. A short day trip for Maria, thus less stress. And for us it reduced the trip to one loooong day drive, which meant we could see her two or three times a month. Her doctors denied us that as well. I remember being in a Redding facility when we got that call and I was reduced to crying like a baby at the disappointment.

It is a sad relief, the more so as I mention our travails oftener than hers. In truth, the last few years were very peaceful for her. Not knowing what was happening, nor where she was, or even who she was, relieved her of an enormous burden of stress and worry. She was pretty much always calm, always napping. Now she is in the sunshine once again.

Otony

May God bless you all, Otony

by Catoosa, Sunday, July 28, 2013, 21:38 (4140 days ago) @ Otony

You did everything you could for her, and that's what counts.

She chose the best stepson

by brionic @, Sunday, July 28, 2013, 22:36 (4140 days ago) @ Otony

Your courage, compassion, and your tireless championing speak volumes, Otony.

Noted, with admiration.
--
Br.

Six days upon the road.....

by Cherokee @, Medina, Ohio, Sunday, July 28, 2013, 18:49 (4140 days ago) @ Otony

Sorry for your loss. God's grace be upon you and family.

Six days upon the road.....

by 5fwyabob, Sunday, July 28, 2013, 20:05 (4140 days ago) @ Otony

Our condolences Tony.
b&A

Six days upon the road.....

by Otony, Sunday, July 28, 2013, 20:09 (4140 days ago) @ 5fwyabob

Fatboy, that you?

Six days upon the road.....

by bob, Sunday, July 28, 2013, 23:58 (4140 days ago) @ Otony

yah, I hate typing codes! My crypto clearance was revoked when I retired! Am sorry to hear about this.
b

I am sorry for your loss

by Jhenry, Sunday, July 28, 2013, 20:57 (4140 days ago) @ Otony

She is in a better place, and while she may have been in a vegetative state, I am sure she knew she was loved.

Six days upon the road.....

by Paul ⌂, Monday, July 29, 2013, 08:36 (4140 days ago) @ Otony

I think what Charles wrote best describes my own thoughts. Thank God for our hope of new life in Christ that carries on to the next life as well. This is one messed up world we live in, the next will be glory indeed!

God Speed...

by Rob Leahy ⌂ @, Prescott, Arizona, Monday, July 29, 2013, 11:33 (4140 days ago) @ Otony

many of us, myself included are all too familiar with the pain that this terrible disease inflicts on not just the patient...

--
Of the Troops & For the Troops

Wow, that's a real tough road Tony.

by Hoot @, Diversityville, Liberal-sota, Wednesday, July 31, 2013, 14:46 (4137 days ago) @ Otony

God speed.

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